Tuesday, November 24, 2009
Follow-up
The vomitting was not related to his heart, evidently. Right now, he
is at his cardiologist appointment.
is at his cardiologist appointment.
Thanks for your prayers.
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Monday, November 23, 2009
Caleb Sick
Wr had to pick up Caleb from school this morning because he had
vomitted three times.
vomitted three times.
It could be a virus, of course. Or it could be related to his heart.
We will be visiting doctors today to hopefully find out.
The Lord is good and His mercy endures forever.
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Sunday, November 08, 2009
Coming Home
Caleb spent the night in the cardiac unit but is now coming home with good news.
We will continue to follow up with his cardiologist.
Thank you for your prayers!
We will continue to follow up with his cardiologist.
Thank you for your prayers!
Saturday, November 07, 2009
Caleb on his way to MCH
After speaking with a couple doctors tonight, we decided it was best to take Caleb to the ER at Miami Children's Hospital. His heart rate was in the high 40's while he was sleeping.
Please pray:
1. That Caleb would not have PLE.
2. That he would be brave and strong when he gets his "pinchies" (needle pokes).
3. That God would use him.
4. Strength and discernment for us.
Please pray:
1. That Caleb would not have PLE.
2. That he would be brave and strong when he gets his "pinchies" (needle pokes).
3. That God would use him.
4. Strength and discernment for us.
Thursday, November 05, 2009
Possible PLE
Thank you for your prayers for Caleb. It turns out that he may have Protein-Losing Enteropathy, or PLE. Diagnosis is still pretty preliminary, and of course we hope it is not correct. We've read about PLE and have known from the beginning that it could be one of the side effects.
We are so blessed that so many pray for him. We are still waiting Halter results.
Check out this article for more info.
Summarized here from above article:
PLE after Fontan operation is a puzzling disease. At the moment, treatment options are limited, but include:
1) general symptomatic relief by using diuretics and changes in diet
2) treatment at the intestinal level with steroids or heparin infusion
3) treatment at the cardiac level by mproving hemodynamics either with medicine (captopril, enalapril), or with a fenestration or a heart transplant.
Still unknown is the precise mechanism of this disease and why it afflicts some children and not others. Further research into the cause of PLE is needed. Once the cause is better understood, more effective treatment options may then be used for this troublesome illness.
We are so blessed that so many pray for him. We are still waiting Halter results.
Check out this article for more info.
Summarized here from above article:
PLE after Fontan operation is a puzzling disease. At the moment, treatment options are limited, but include:
1) general symptomatic relief by using diuretics and changes in diet
2) treatment at the intestinal level with steroids or heparin infusion
3) treatment at the cardiac level by mproving hemodynamics either with medicine (captopril, enalapril), or with a fenestration or a heart transplant.
Still unknown is the precise mechanism of this disease and why it afflicts some children and not others. Further research into the cause of PLE is needed. Once the cause is better understood, more effective treatment options may then be used for this troublesome illness.
Wednesday, November 04, 2009
Update
Would you please take a moment today and pray for Caleb. We took him to the cardiologist today after noticing that he hasn't been himself lately. The doctor said that he is having arythmias and his heart beat is low (in the 50's when it should be in the 70's).
His liver is not enlarged anymore, though. We are taking him off of Lasik.
Please pray for wisdom as we have a plane trip planned for next week.