Update -Tuesday PM

Janet is feeling pretty sick. It has to do with her pregnancy. We'll trust God's timing on that one.

Pat is adjusting to living in a hotel room/hospital room for thirty days. We love the facility, we are super-duper thankful and are being well taken care of, but there is nothing like home. We knew this would be a challenge so we will trust that the Lord will get us through. This is one of those situations that having been on a lot of missions trips helps.

Caleb did great today - totally cooperative with all the nurses/techs, etc. Like, he didn't even cry or scream or anything when they poked him with a needle to draw blood! That's my boy! He said it didn't even hurt. I was shocked, surprised, and so proud of him. He's my hero!

Genesis is being a trooper. Both kids are doing great, all things considered. They have crafts at the RMH (Ronald McDonald House). Last night they made a bird house, tonight they made door hangers.

So, please pray for
1) strength and wisdom. There's always decisions to be made and weakness to feel.
2) successful surgery and speedy recovery. This is huge. The trip could be a lot shorter if Caleb recovers speedily.
3) health for everyone. Hopefully, Janet being sick won't spread to Genesis and Pat.
4) a little sanity would be nice once in awhile, too!!!

We should get a call sometime tomorrow afternoon telling us what time the surgery will be. The pre/surgery/post will be about 3 1/2 hours. The longest part is cutting through all the scar tissue.

Tomorrow we hope to go to Sesame Place for a day of fun with Big Bird. Hopefully, and prayerfully, none of us will behave like Oscar!!

We are also hoping to see our friends Nilson and Betty Hernandez who flew up today to spend a couple weeks here with us.


Pat

At the Hospital

After filling out all the paperwork, we are now in echo exam room #2 waiting for the tech. She is looking for Caleb's favorite movie, Cars, so he can watch Lightning McQueen during the test.

A Rainy Day in Philly

After getting checked in to the wonderful Ronald McDonald House in Camden, NJ, and grabbing some lunch, we decided to ride the subway and go see the Liberty Bell. Thanks to the rain, lines were virtually non-existent. While we were out we got a call from one if the doctors at CHOPS saying he needed Caleb's post op notes.

Oh no! We thought we had sent these months ago. It was already after 5:00pm. Our contact at MCH had already left. We sent her an email and then set out on our quest for a Philly cheese steak. Five blocks later we got to our destination: Jim's Steaks. We told the guy we had walked five blocks in the rain and we were from out of town, could he please hook us up with whatever the locals get.

It was yummy!

Today, we got word that the reports we need would be faxed.

Now, we are off the breakfast and then on to the hospital.

On the Plane!

We are sitting on our American Airlines jet. We've got our seat belts fastened. We are ready for take off!
Last night, we had quite an adventure as we found out that Philadelphia had received the wrong test results from Miami Children's.. It was after business hours; medical records wasn't answering the phone. So we drove over to the hospital to see I we could find someone to help us. We needed a cd of Caleb's caths.

After knocking on some doors that appeared to be closed, and speaking with some very helpful people, we finally were assured that the cd could be sent overnight today.

So hats off to Miami Children's for going out of there way to help us!

Planning: Full Steam Ahead

We leave in less than a week to Philadelphia. It will be our first time at CHOPS. We're looking forward to it.

We were thinking about driving to New York on Tuesday from Philly, but it might be too much for such a short trip. While we are in Philly, we are hoping to stay at the Ronald McDonald House.

We eagerly ask and thank you for your prayers.