Santa

Follow-up

The vomitting was not related to his heart, evidently. Right now, he
is at his cardiologist appointment.

Thanks for your prayers.

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Caleb Sick

Wr had to pick up Caleb from school this morning because he had
vomitted three times.

It could be a virus, of course. Or it could be related to his heart.
We will be visiting doctors today to hopefully find out.

The Lord is good and His mercy endures forever.

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Coming Home

Caleb spent the night in the cardiac unit but is now coming home with good news.
We will continue to follow up with his cardiologist.
Thank you for your prayers!

Caleb on his way to MCH

After speaking with a couple doctors tonight, we decided it was best to take Caleb to the ER at Miami Children's Hospital. His heart rate was in the high 40's while he was sleeping.

Please pray:

1. That Caleb would not have PLE.
2. That he would be brave and strong when he gets his "pinchies" (needle pokes).
3. That God would use him.
4. Strength and discernment for us.

Possible PLE

Thank you for your prayers for Caleb. It turns out that he may have Protein-Losing Enteropathy, or PLE. Diagnosis is still pretty preliminary, and of course we hope it is not correct. We've read about PLE and have known from the beginning that it could be one of the side effects.

We are so blessed that so many pray for him. We are still waiting Halter results.

Check out this article for more info.

Summarized here from above article:

PLE after Fontan operation is a puzzling disease. At the moment, treatment options are limited, but include:

1) general symptomatic relief by using diuretics and changes in diet

2) treatment at the intestinal level with steroids or heparin infusion

3) treatment at the cardiac level by mproving hemodynamics either with medicine (captopril, enalapril), or with a fenestration or a heart transplant.

Still unknown is the precise mechanism of this disease and why it afflicts some children and not others. Further research into the cause of PLE is needed. Once the cause is better understood, more effective treatment options may then be used for this troublesome illness.

Update

Would you please take a moment today and pray for Caleb. We took him to the cardiologist today after noticing that he hasn't been himself lately. The doctor said that he is having arythmias and his heart beat is low (in the 50's when it should be in the 70's).
His liver is not enlarged anymore, though. We are taking him off of Lasik.
Please pray for wisdom as we have a plane trip planned for next week.

Nothing Like Ice Cream

Liver

Caleb had an enlarged liver. Dr. Mas increased his dose of Lasik.

Fontan Heart Surgery Scar After 2 Months

First Day of School!

Big Day Tomorrow!

Caleb starts Pre-K4 tomorrow at Florida Christian School. Should be fun.....

Caleb at the Doctor

Today is Caleb's Birthday!!

Birthday Pic

Honorary Fireman

Caleb's B-day party at the firehouse!

Update

Caleb just left the cardiologist office. His post-fontan check-up was
perfect. Dr. Mas is thrilled at his progress and recovery. Caleb will
still be on LASIK to avoid plural effusions and his physical activity
still needs to be limited.

Thank you Lord for all You are doing.

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Angela is resting in the arms of her Maker

Sent from my iPhone

Begin forwarded message:

From: "Claudia Arango" <arangoc@globaloutreach.org>
Date: July 5, 2009 4:53:17 PM EDT
To: "Claudia Arango" <arangoc@globaloutreach.org>
Subject: Angela is resting in the arms of her Maker

Dear Friends,  It is with a heart  filled with lots of emotions I shared that our precious Angela has passed away this Sunday morning.  I will miss this sweet little girl but I rejoice that she is well and resting in the arms of Jesus.  The suffering, neglect and deprivation she went through here on earth by those who instead should have treasured, cared and loved her has come to an end.  I knew that only Jesus had the power to heal her and keep her with us and I  knew that I needed to leave that up to Him, knowing that His ways are greater than our ways.  My responsability was to be His hands to her and show her our Father's love for her as I had the opportunity to care for her.  Oh Lord Jesus how greatful I am for that oportunity you gave me for that short period of time.  I am greatful for every chance I had to feed her, to hug her, to comfort her  and to love on her.  I am greatful for the times I saw my girls seating by her side either reading her a book or simply holding her hand,  The day before she went into the hospital I danced with her in my arms to the worship music my daughter Hope played with her guitar for us.  Thank you Jesus for those sweet times with Angela!  She touched my life and the life of my girls and also the lives of many as they felt drawn with love to pray for her.  The many emails I received after sending news on Angela were a displayed of God's love among His people.  E mails filled with encouragement, concerns and offers to help,  and love.  Thank you to all of you for your prayers during this time and we all know that this is not the end as we have the hope one day we will see Angela again in our heavenly home.

 

Blessed be the name of the Lord!

 

In His Service,

 

Claudia

A Crazy Combination: Caleb and Fireworks!