Thursday, November 10, 2005

No Lovanox, Early Cath and Glenn Operation Discussed

Here's the latest:
  • the doctors decided not to administer Lovanox, the drug that would have to be given via injection twice a day to prevent further clotting. We are a bit relieved that we don't have to "poke" Caleb.
  • Dr. Zahn is happy with Caleb's size and says he's ready to do a cath to take a closer look at the heart in preperation for surgery number two, the Glenn.
  • Typically, the best time to do the Glenn is at four to six months. Caleb is three. They are thinking about doing an early Glenn.
  • The GI doctor decided to remove the feeding tube. Caleb will feed by mouth only now. He will be trying some solids, malanga, cereal, etc. We like seeing his face without the tube! He's still throwing up a couple times a day in spite of all his reflux medicine. I'd probably throwing up too if I was taking all that stuff!
  • We have been awestruck at the outpouring of love by our friends and church family. We truly see the hand of our gracious God in you!
  • We'll be in the hospital until at least this Monday.
  • Please pray for Genesis as we don't see her as much as we'd like.

1 comment:

Anonymous said...

What a rollercoaster you all have been on and still the ride continues...many prayers for a successful hospital stay for Caleb. Glad the feeding tube is gone, can't wait to see his handsome face again!! Prayers for Genesis too as she faces another separation from her family, it's always hard. The first year is the hardest to get through in this new world you face with Caleb. It does get so much better, Caleb sure is so strong, you'll see!! Hopefully they'll get those clots under control too. Is Caleb on a blood thinner at all? My son had a stroke after his fontan surgery aged 3.5. During the cat scan they discovered he had already had previous infarcts to the brain as well. Joel was VERY lucky and made a full recovery but is on warfarin now for life. Of course no surgeries is the better option for our special babes, but I'm hoping that the Glenn surgery is just what Caleb needs. Good luck with the feedings. Thinking and praying for you all...

Big Hugs
Jackie, Joel (HRHS-15) & Lisa
WA-Australia