Home Again, Home Again

We are going home today. It will be good to have the whole family together. Anytime one of us is out with Genesis, she always asks about KB and the hospital.

The decision has been made to go home with a NG tube. This is a tube that goes up Caleb's nose and down into his stomach. Janet has learned how to insert the tube. Caleb will eat primarily by mouth and then whatever he doesn't take by mouth will be inserted into the tube. He hasn't vomited in many days now and seems to be gaining weight consistently.

We have also been keeping an eye on his hypotonia. Hypotonia is low muscle tone and "floppiness" that we have posted about before. We are really trying to work with him doing different exercises we have learned through the physical and occupational therapists.

As we have been adjusting to this new lifestyle so many people have supported us through prayer. Where would we be without you? Where would we be without the gracious hand of our Lord, Jesus Christ, to carry us and cover us?

We have, at times, found ourselves doubting, questioning, even getting a bit upset. Frankly, it's surprising and revealing. You don't think your capable of certain feelings and then you find yourself struggling with them. I read a devotional this morning that said that trials don't make you upset or bitter; they only reveal the anger or bitterness that's already in your heart. So this trial has helped us to see how needy we are. It has helped us learn about God's grace unto us and his faithful love for us. For that, we are thankful.