The Pump That Let's Us Sleep

During the night now, Caleb is fed via a pump that is connected to his feeding tube. This has a couple advantages. All we have to do in the middle of the night is add formula into the pump and then reset it. This saves us time. We also have a portable backpack so we take his pump with us if we need to.

This week Caleb will see the opthomologist on Monday for his clogged tear ducts. On Wednesday, he goes for physical, occupational, and speech therapies; he will also get an ultrasound of his hip to see if his laxity has improved. We also are hoping to get him to see a gastro-intestinal doctor to see about doing something for his occassional vomitting and diarrea.

One concern we have is Caleb's hypotonia, his floppiness. He obviously is growing and becoming stronger and moving his head and arms more. But we are not sure what long-term effects, if any, he will have because of this. Hopefully, there won't be any. We are trying to work hard doing physical therapy with him. We also will be seeing a neurologist soon to follow this up.

Overall, we are feeling that we are making progress. We are on a good road and are trusting the Lord. We are getting into a pattern that is a bit more manageable.

Thank you all for your prayers. Please know that we read and appreciate all the posts.