Monday, October 03, 2005
We thought this was going to be a short visit...
We are still here but hoping to be discharged within the next few days unless we decide that the G-tube is the way to go. The MRI results are back and we are waiting for the neurologist to tell us his interpretation. We are also meeting with the pediatric surgeon that will perform the G-tube operation if we decide to go that route. Hopefully these GI tests will help us decide what is best for Caleb. He looks a bit chunkier these days since they stopped giving one of his diuretic by IV and stopped the other one all together. I was so happy to read so many posts from the Hypoplastic Right Heart Web Site. Thanks for your encouraging words and prayers. For those of you reading the posts and wondering what HRHS, that is the short way of describing Caleb's heart condition and the condition of a number of other little miracles we have met during the recent months via an online support group for families of babies who have problems with their right ventricle and valve. We plan to post MRI results soon. Thank you all for your love!
8 comments:
I am so glad to see that Caleb is looking a little heftier. I pray you all are able to go home soon. Looking at your site, your faith is amazing, and so encouraging to see. God will see you through this. I hope the MRI results are good. Please let us know when you can. Our hearts and prayers are with you, Desire' and Ethan
Best wishes on good MRI results. I am catching up on Mr. Caleb. He sounds amazing. My daughter had a NG tube for five months and then a g tube for three years. Please let us know what we can do to help you guys.
Stephanie Miller
Proud Mom to Miranda HH 5
Angel Lauren Faith Miller
I am sending many prayers that Caleb's MRI results give you great news.I know it's not easy to look at your presiuos child with all of these tubes and stuff..I do understand. I will keep prayers and faith that he'll be home soon...God bless.
Toni(HRHS Group)
mommy to Giana Faithe
DILV,L-TGA,VSD,ASD,WPW
carepage:gianaromayor
Pat & Janet, I am checking on you guys daily. I'm sad that you weren't able to join us for Zach's birthday but I know Caleb is getting the care he needs to grow stronger. I don't have to tell you that you have the most amazing doctors and nurses caring for Caleb. Hopefully you guys will be home when Zach and I are back there on Oct 10th for his cath. Sending love and hugs!
Praying for HOME for you all, praying that there's no need for the G-tube, especially since he is looking "chunkier"...I hope this continues and it's not long before he becomes a chunky monkey!! : ) You guys have not had the greatest of journey's so far, but it does get better. Keep strong, and we'll keep praying for you all out here!!
Big Hugs
Jackie, Joel (HRHS-15) & Lisa
WA-Australia
Just wanted to let you know we are thinking of Caleb and hoping you guys can get home soon.
HUGS
Dorothy & Jordan (HRHS)
GI? What's a GI? well, if it helps my Caleb in any way, then, well, you have to ask the Lord first, but if he says yes, than go for it! Love you guyses and you guys are constantly in my prayers!!
Love,
Aimee Nicole~
Pat and Janet
We are so happy to hear that Caleb is getting chunkier. We continue to pray that the Lord will do things even when to us they seem impossible. We also pray for strenght and wisdom in all the decisions you have to make.
God Bless you all...
The Balaban's
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