- Caleb seems to have an eye infection - he's taking medication for that.
- The cardiologist says he's doing great - except that he is breathing too fast. She prescribed a medicine that should help that. We hope that his breathing will get better as he grows.
- He is still floppy, or hypotonic. This means that his muscle tone is not where it needs to be. I notice it most in his upper arms. We are navigating the sometimes difficult waters of insurance, goverment programs etc to get him all the therapy and treatment that he needs. This takes a bit of time.
- A nurse comes to our house three times a week to monitor Caleb's progress.
- We see the cardiologist again on Monday.
- Janet is amazing. She's doing a great job at a very difficult task. Please keep her in prayer.
That's all for now. Thank you so much.
10 comments:
Janet, sorry I missed your call. I will try to call tomorrow. I can help you with the physical therapy stuff. Zach goes once a week to an AMAZING therapist! He was diagnosed with mild hypotonia.
Val Breder
Janet, Pat, Genesis & Caleb, continuing to hold you all close in prayer. Thank you for keeping us updated. May God bless and strengthen each of you.
Love and blessings,'
Kim
Pat, Janet and Precious Kids-
I was thinking about you and just praying for God's grace to be sufficient for all that you'll face today. May He strengthen all of you....
Enjoying His love.
Ileana
hey guys...know that we are praying for you and can't imagine what the long road ahead of you holds...God is Sovereign and in control...we can rest in that...I pray that He fills with divine strength, wisdom and understanding...Love you guys,
Dan
My son has Tricuspid Atresia and he just turned 2 on Aug. 5 2005. He is doing fairly well, we are waiting for the fontan. He has a Pulmonary Artery band placed at 2 mos. of age. He is also long and skinny. Hope everything goes well.
Alex Knoell
Alex,
We'd love to hear more about your story. Where are you from, how did your son do with the Glenn operation, etc.? Feel free to share here or email us at psieler@gmail.com.
Thanks.
The Lord is amazind and so are the two of you! I am continuing to pray for all of you. One day at a time, my friends is all I can say. Keep us posted. I am very interested in Caleb's progress. Give a big hug to Genesis for me. I am praying for her that she will love and cherish her little brother.
I've been following your page now for a little while on your precious son Caleb. What a beautiful site you have set up too! I will keep all of your family in my prayers during this transition to caring for Caleb at home...certainly is an eye opener isn't it. I'm sure you are both doing the most perfect job for your son.
When my son was diagnosed back in June 1990, I was angry with everyone, especially God...all these years later, I realise, even in the hardest of times, that God chose me to look after my son, I am more than blessed to have him in my life.
Those first 12 months are just the hardest as you come to adapt to the world of CHD's, but I KNOW you will all do well, so will Caleb!
My son was born with Tricuspid Atresia, ASD, VSD and hypoplastic right ventricle. Joel is coming up for 12 years post op fontan in January 2006!! ALL IS WELL, ALL IS GOOD!!
I'll be keeping Caleb and your family in my thoughts and prayers for the card. appt on Monday..I hope all goes well...
Big Hugs to you all
Jackie, Joel (HRHS-15) & Lisa
WA-Australia
Hi Pat!!! it was really nice to genesis and u at church today. I luv u guys and continue to pray for baby Caleb. I have email now, and i'm still kinda new to it, so if i don't answer in a couple of days, i'm sorry. luv to all y'all!!!
Hello my brother and sister,
Lord, we thank you for blessing us with Baby Caleb. We pray for a good report with the cardiologist today. May the Lord continue to do a great work in Caleb and may He strengthen him in a mighty way in the days to come. We pray that the Lord will give Pat and Janet wisdom with the different therapists and doctors available. We also pray for healing for Caleb's eye infection. We lift up Janet to you and pray that Your grace will be sufficient for her, and that you will strengthen her each day. We thank you for the example she is in our lives. And for our Genesis. May the Lord continue to bless her and grow her in His ways. We love you, The Checas
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