Right now, Caleb is undergoing an MRI of his head and spine. The results will be examined to determine if any of his hypotonia is due to anything abnormal in these areas.
As far as the meeting on Wednesday, it was a unanimous decision not to do anything to Caleb until he gains weight. They want him to be 6 kilos before they do a cath or surgery. (Maybe our friends in Canada could tell us how many pounds equals 6 kilos!) How they get him to gain weight is up for debate. Many of them want him to have a G-tube. This is a tube that goes directly into his stomach. We then would feed him by attaching an apparatus to a hole/button on his stomach and inserting food manually. This would be less work for him and for us. This disadvantages, of course, is that he would have to undergo another surgery and he would have a little protuding thing on his tummy.
The second option is to go home on a feeding tube. This is the tube that we have used in the hospital to feed him. It is inserted into his nose and goes down his throat into his stomach. The advantage is that it is non-surgical. The disadvantage is that he could still choke and throw-up on occasion.
Please pray that God gives us wisdom in making these decisions. Thank you.
5 comments:
Saying a prayer for your sweet baby boy.
Blessings.
Praying for Caleb! Val alerted us on the hrhs board that things weren't going 100% wonderful. :-(
The feeding stuff truly is a big deal -- sometimes it's a bigger deal, by the end of the day, than the heart stuff. Gosh is he cute!
Sincerely, Monica (Celine's mom, hrhs)
Please know that Caleb is in our prayers. I am so sorry that things are not as up to par as had hoped. We will pray for the 6 kilos (sorry, I'm American and have no clue what the conversion is). I'm sorry to hear of the G-tube - but whatever is best for Caleb. I will watch for updates on the MRI. Our prayers are with you. Hugs, Desire' - HRHS board
Hello, just wanted to let you know that I am thinking of you and Caleb and praying for strength and healing for him. Val from the HRHS board alerted us about Caleb's situation and I'm so sorry that he's having such a rough time. My son Noah also went home on a NG tube after the BT shunt, but we took it out after a week because he was feeding fine. Heart hugs to you!
Kristen & Noah (HRHS)
P.S. Noah has the same blog template as Caleb!
Keeping you all high in my thoughts and prayers, especially precious Caleb. He's so handsome and I just love all his hair!! Hoping you get some clear answers and a clear direction to travel in with Caleb's journey...Keep strong, keep the faith, keep fighting little man!!
Big Hugs
Jackie, Joel (HRHS-15) & Lisa
WA-Australia
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