What Will They Do To Fix Caleb

Since we were moved to the CICU on Sunday he has been feeding 10-15 minutes by mouth and whatever he doesn't finish they give it via a feeding tube in his nose. He is still throwing up a bit so they have decreased the amount of milk he is taking. One possibility was to make sure he was gaining weight using this feeding system and we would go home feeding him this way until he was ready for a diagnostic cath for the Glenn (2nd surgery). This is not an option anymore. Recent heart studies show that his heart is very large and there are significant markings in the lungs along with high pressures and measurements that are forcing them to intervene now. He will have a cath done this week to determine what is causing him to be in heart failure and pulmonary hypertension which can put the second surgery in danger and make him a candidate for transplant. If they cannot fix the problem or problems in the cath lab he will have to be reoperated (adding an operation to the series, making it four instead of three). Speaking of transplant...Please seriously consider becoming an organ donor. There was a 14 year old boy that was here since our first stay that died on Saturday waiting for a heart to be donated. This is the second child that dies during our time in the cardiac units. Please pray for God's strength and healing.